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4 sites in this link directory
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SAKKS - Supporting Aussie Kids with Kabuki Syndrome
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SAKKS offers information, external links to genetics departments and research as well as links to medical information, a forum and a stories page with personal accounts of the challenges of coping with a child that has KABUKI SYNDROME. It also offers photographs, contact with other parents, membership, sibling information, early Intervention and educational links and of course - support.
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http://www.sakks.org
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